Many fibromyalgia sufferers will share similar thoughts. Read our blog to understand what those thoughts are.
Having fibromyalgia is tough. Not only does it cause extreme pain, it can also have a psychological impact on sufferers, leading to depression and, in some cases, anxiety. Initial symptoms of fibromyalgia can cause a vicious cycle to begin, which is hard to escape from; after being diagnosed, patients will often experience exhaustion, which then leads to stress, leading to increased pain and so on. Those who are new to fibromyalgia as a condition will find it difficult to understand the complexities of it, as it is poorly understood and, unlike many other conditions, is not visible. In this blog, we reveal some of the most common thoughts which run through sufferers’ heads to help educate those who are keen to understand more about the condition.
Thought 1: “Please accept my ‘maybe’ to your invitation!”
Fibromyalgia is unpredictable. For sufferers, making arrangements can be an extremely difficult thing to do, as each day is different. Some days will be bad, some will be good. The pain and discomfort caused by fibromyalgia varies. Plans can be made, but when it comes to it, some patients may not have enough energy to see them through. In these cases, it is important for sufferers to listen to their body and rest.
Thought 2: “I’ve had enough, just let me vent.”
Sufferers do not want to talk about their condition all the time. However, when things become too much, they do want to vent – just like everyone else! At the moment, fibromyalgia is incurable and this thought is mentally challenging and tough for sufferers. When a sufferer is ‘moaning’, they do not expect answers or solutions; instead, they just want someone to listen and provide some sympathy. The last thing they need is to feel guilty about the understandable feelings they are experiencing.
Thought 3: “When will this end?”
It is estimated that approximately 1.5 to 2 million people in the UK are suffering with fibromyalgia. Despite this staggering statistic, medical professionals still understand very little about the disease and, although there are specific treatments to help relieve pain and discomfort, there is currently no cure.
Thought 4: “Where did I put that?”
One of the most common side effects of fibromyalgia is ‘fibro fog’. It can manifest itself in many different ways depending on the person it affects. Some of the most common symptoms include the following:
- Short-term memory loss
- Misplacing objects
- Becoming easily distracted
- Forgetting plans
- Difficulty carrying on conversations
- Inability to remember new information.
Thought 5: “I cannot carry on.”
The effects of fibromyalgia can sometimes be so extreme that a sufferer often experiences depression. A positive mindset is thought to reduce the pain a sufferer feels, however, this is easier said than done. The pain experienced by sufferers is often so bad that it can seem impossible to carry on. Without the right support, a sufferer will find it extremely hard to overcome their bad times.
Thought 6: “You just don’t believe me!”
Fibromyalgia is an invisible illness. Although times are changing, many people still believe the condition is a figure of imagination. Symptoms are not visible, therefore, some people find it difficult to believe that a patient is in as much pain as they say they are. This is extremely frustrating for sufferers. Further awareness is needed to ‘spread the word’ about fibromyalgia, so more people become educated and understand that it is real.
Being a sufferer of fibromyalgia is hard, however, it does not mean that it is the end. At Brian Barr Solicitors, we understand how the condition affects patients, as we are experts in handling compensation claims for many fibromyalgia sufferers. This is why we are so passionate about raising awareness of the condition, so that one day, there can be a cure for patients who have been affected. We hope this blog has helped to open your eyes as to how fibromyalgia truly affects people.